Open Notes Patient Digital Literacy and Communication Initiative
Empowering Health Care Consumers
April 4, 2022
Clinical visit notes are an important resource for helping patients and families remember and act on information discussed during a visit, including treatment plans, medication, and care coordination.
Shared visit notes, often referred to as open notes, are an important way to help consumers become active participants in their own care. The 21st Century Cures Act, which went into effect last year, includes a federal mandate that requires all health care providers that maintain electronic medical records to make clinical notes available to patients electronically and at no charge. However, the level of compliance and, most importantly, the proactive use of open notes to improve care varies. For some hospitals, note-sharing is embedded into their practice, and they are ready to expand the types of notes and information they share and to test out innovative ways to meaningfully engage patients. For others, note-sharing is new territory, and they can benefit from adapting proven tools to their own settings and learning best practices from more experienced hospitals. In 2021, NYHealth issued a Request for Proposals (RFP), “From Good to Great: Improving Access to and Use of Patient Visit Notes,” to support hospital facilities in New York State in sharing open notes in compliance with new federal rules and in going beyond compliance to use open notes to more meaningfully engage patients. In 2022, NYHealth awarded State University of New York Downstate Health Sciences University (SUNY Downstate) a grant to participate in this initiative.
Under this grant, SUNY Downstate will continue to implement and improve the use of shared notes at its hospital site, promoting greater information transparency and engaging patients in their care. SUNY Downstate will undertake an open notes expansion at University Hospital of Brooklyn (UHB). Located in the East Flatbush neighborhood, UHB is a safety-net training hospital for the 3 million residents of Brooklyn and directly serves nearly 500,000 residents. With this grant, SUNY Downstate will support patient use and understanding of notes by launching a patient portal campaign and helping patients and caregivers access the portal. It will also train staff members on how to engage patients in using open notes. SUNY Downstate will also participate in a 12-month learning collaborative led by OpenNotes staff to explore strategies and tools for note-sharing, including understanding the new federal mandate; sustaining clinician engagement; adopting effective communication strategies to introduce open notes to both providers and patients; and sharing notes in the context of adolescent, pediatric, inpatient, and behavioral health settings, among other areas.